I need time without having to monitor my relativity to another human. That’s tough when another human stares at you every waking minute of your life.
“Is she cutting her hair while it’s dirty? Is that easier? Why didn’t she wash it first?” “She wouldn’t let her wash her hair,” said my stylist.
The door opens, she walks to the edge of our bed and loudly exclaims, “Aren’t you getting up?” It’s a bit jolting even though you expect it.
If this blog helps someone else understand dementia and caregiver life, if it helps them feel like they are not alone, then I believe it’s valuable and I’ll keep at it.
The Caregiver Support Group said it would be good for me to keep a journal. Here is my latest entry: My Caregiver Life It’s the most underrated job and yet the most intensely compassionate job I can imagine. She says I don’t do anything all day, yet I am 100% present and engaged as her … Continue reading Nicky’s Journal
“Where’s Joe?” Mrs. Huntington asked. “Mom, he died three years ago,” Nicky answered. “Well, he won’t give you the time of day!” Nicky’s eyebrows shot up. This was her usual response about anyone who had not called her in the last five minutes. “I’m sure he would if he could.” She asked this question repeatedly … Continue reading You Can’t Get There From Here
The days are getting longer and Mrs. Huntington wakes up earlier. She usually wakes up with the first light of day. Up until now, it’s been around 7:45, but lately it’s closer to 7:30. Nicky wondered if she would be getting up at 6:30 in the middle of summer. He’d just got back from taking … Continue reading Roses are Red, Spit is Blue